WHO's WHO

Martin Knapp

Personal Social Services Research Unit, London School of Economics and Political Science, UK

Martin Knapp is Professor of Social Policy and Director PSSRU at LSE. He is the Principal Investigator for the STRiDE project. He has also been Director of the NIHR School for Social Care Research since 2009. His current research emphases are primarily dementia, child and adult mental health, autism and long-term social care; much of his work has an economic focus, and in all of it he seeks to tease out the policy implications. He has published almost 600 peer-review journal papers and 15 books. His work has had numerous impacts on policy and practice in these areas.

Adelina Comas-Herrera

Personal Social Services Research Unit, London School of Economics and Political Science, UK

Adelina Comas-Herrera is an Assistant Professorial Research Fellow within PSSRU at LSE and co-leads the STRiDE project. She is also academic project manager of the Modelling Dementia (MODEM) research project which aims to estimate the impact, in terms of costs and quality of life, of making interventions that are known to work for people with dementia and their carers more widely available by 2040. She is a consultant for the WHO, working on the development of a tool for countries to self-evaluate their long-term care systems. She has previously worked on making projections of future long-term care expenditure for the UK and other countries, and also on evaluating the potential role of private insurance and private/public partnerships in long-term care financing.

Emiliano Albanese

Personal Social Services Research Unit, London School of Economics and Political Science, UK

Emiliano Albanese is a consultant on the STRiDE project. He is a physician with an FMH in public health, an MSc in public health and an MD-PhD in clinical neuropsychology. Emiliano is Assistant Professor of public mental health in the Department of Psychiatry and Director of the WHO Collaborating Center for Research and Training in mental health at the University of Geneva. He worked at and still collaborates with the Institute of Psychiatry (King’s College London) and the National Institute on Aging (NIH, Bethesda, USA), and collaborates with the Lisbon Institute of Global Mental Health; and is an active member of the ADI 10/66 group. He has collaborated with the WHO Department of Mental Health and Substance Abuse in a number of activities including the WHO mhGAP and other dementia-related programmes. The focus of his research is cognitive aging and dementia and their epidemiology from a broad public health and evidence base perspective.

Suvarna Alladi

National Institute of Mental Health and Neuro Sciences, India

Dr Suvarna Alladi is a Professor of Neurology at the National Institute of Mental Health and Neurosciences, Bangalore. She graduated with a DM degree in Neurology from NIMHANS Bangalore in 1998, and obtained a Postgraduate Certificate in Cognitive Ageing Research Methods for Medical Scientists from the University of Edinburgh in 2012. In 2006, she was awarded the Commonwealth Academic Staff Fellowship in Cognitive Neurology at the University of Cambridge.

Rochelle Amour

Alzheimer’s Jamaica, Jamaica

Rochelle Amour is the Assistant Director of Alzheimer’s Jamaica and the co-founder of the Age Caribbean Consultancy. She has a BSc in Psychology (1st Class Honours), with a minor in Human Resource Management, and is certified in Project Management. She worked at the Division of Ageing in Trinidad before pursuing her MSc in Gerontology at King’s College London. While at King’s, she worked with Help Age International developing content for the 2014 Global Age Watch Index and collaborating on dementia research at the King’s Old Age Psychiatry Unit at the Institute of Psychiatry, Psychology, and Neuroscience. Rochelle is also a registered nonfiction writer with the Culture Division in Trinidad and Tobago.

Sube Banerjee

Brighton and Sussex Medical School, UK

Sube Banerjee is Professor of Dementia and Associate Dean at Brighton and Sussex Medical School, directing its Centre for Dementia Studies. Clinically he works as an old age psychiatrist. Sube is active in health system development and works with industry and governments on health systems, policy and strategies to improve health for older adults with complex needs and those with dementia. Sube’s research focuses on quality of life and quality of care in dementia.

Paola Barbarino

Alzheimer’s Disease International, UK

Paola Barbarino is Chief Executive Officer at ADI. Paola is in charge of all aspects of ADI’s work. Collaborating with the Board, Paola implements finance and campaign strategies. Paola represents ADI at international conferences and in the NCD Alliance and takes part in WHO and UN meetings.

Erica Breuer

University of Cape Town, South Africa

Erica Breuer is a global health researcher with skills and expertise in mental health, health services research, monitoring and evaluation, programme management and theory driven evaluation. Since 2011, she has worked on the Programme for Improving Mental Health Care (PRIME) based at the Alan J Flisher Centre for Public Mental Health in the Department of Psychiatry and Mental Health. She holds an MPH from the University of Cape Town and has recently submitted her PhD looking at the role of Theory of Change as an approach to designing and evaluating complex interventions in health care.

Sumaiyah Docrat

University of Cape Town, South Africa

Sumaiyah Docrat is a South African health economist and PhD candidate at the Alan J Flisher Centre for Public Mental Health, University of Cape Town. Sumaiyah’s work has included the development of cross-country research methodologies, the analysis of household survey and health system financing data and ongoing engagement with key stakeholders involved in mental health services and financing across the six low-and-middle income country sites of the Emerald (Emerging mental health systems in low- and middle-income countries) Project.

Sarah Drew

Personal Social Services Research Unit, London School of Economics and Political Science, UK

Sarah Drew is a medical sociologist specialising in qualitative research methods. Prior to working at LSE, she worked at the Universities of Oxford and Bristol on National Institute for Health Research funded studies. Sarah’s research is primarily focussed on older people and includes experiences of living with musculoskeletal disorders, health service delivery, the implementation of complex interventions and treatment-seeking behaviour. She has experience of these both within the UK and in a low-income setting in sub-Saharan Africa. 

Petra du Toit

Alzheimer’s South Africa NPC, South Africa

Petra du Toit is Executive Director of Alzheimer’s South Africa. She specialised in Medical Social Work at the University of Stellenbosch, and has worked as a social worker in the fields of dementia, mental health, military social work and trauma. In 2011, Petra joined Alzheimer’s South Africa as a social worker and was appointed as Executive Director in 2015. She is passionate about contributing to the quality of life of people living with dementia and their families working towards the development of a National Dementia Plan for South Africa in cooperation with relevant role players, establishing and developing a Dementia Friends Programme in South Africa, and supporting and actively taking part in research in the field of dementia in South Africa.

Sara Evans-Lacko

Personal Social Services Research Unit, London School of Economics and Political Science, UK

Dr Sara Evans-Lacko is a mental health services researcher with a particular interest in the role of health services and social support in the prevention and treatment of mental illness. Her research focuses on developing innovative methods to improve access to and quality of mental health care for young people and cross-cultural applications of this in addition to the evaluation of public health interventions such as the Time to Change anti-stigma campaign which aim to improve important changes at the population level.

Nicolas Elias

University of the West Indies, Jamaica

Nicolas Marc Elias is an early career health researcher from Trinidad and Tobago who holds a BSc in Biomedical Sciences with minors in Public Health, History, and Biomedical Physics from the University of South Florida. He has been living in Jamaica for the past six years, where he was working as a Research Officer for the Ministry of Health and pursuing a Master of Public Health degree at UWI Mona (expected 2018). To date, Nicolas has conducted and coordinated research projects with a vast array of stakeholders in a resource-limited setting and was part of the committee responsible for defining Jamaica’s Health Research Priorities and Health Research Agenda. Nicolas also has training and interest in the use of GIS mapping as a public health tool.  

Nicolas Farina

Brighton and Sussex Medical School, UK

Dr Nicolas Farina has eclectic research interests spanning from the benefits of physical activity, to identifying ways to maintain and improve people’s quality of life. The consistent element of his research is that it always involves people with dementia. More recently, his research interests have moved to understand people’s attitudes of dementia and also how best to improve them.

Cleusa P Ferri

Universidade Federal de São Paulo, Brazil

Cleusa P Ferri is a psychiatrist and epidemiologist, and currently a Professor in the post-graduation program of the Psychobiology Department at the Universidade Federal de Sao Paulo, Brazil. She coordinated the research activities of the 10/66 Dementia Research Group for more than a decade at King’s College London, developing research on the epidemiology of dementia and other chronic conditions among older people in low- and middle-income countries. She has returned to her home country, Brazil, where she continues to carry out research, leading the INDEPI-BR study, which focuses on the epidemiology of dementia and care provision for late-life mental disorders within the context of the limitations and possibilities of the current public Brazilian health system (SUS – Sistema Unico de Saude).

Emily Freeman

Personal Social Services Research Unit, London School of Economics and Political Science, UK

Dr Emily Freeman is an anthropological demographer focused on ageing and sexual and reproductive health, and the way in which they shape and are shaped by social institutions and processes. Emily's research includes long term social care in Africa, sexual behaviour and HIV/AIDS in older age, sexual health (including abortion), sexual partnerships and fertility intentions.

Ishtar Govia

University of the West Indies, Jamaica

Dr Ishtar Govia, Lecturer in Epidemiology at the Caribbean Institute for Health Research, UWI Mona, is a research psychologist, specializing in mixed methods and implementation science. She is Executive Director of Alzheimer’s Jamaica and works with persons with dementia and their helping network. Her research interests include social determinants of health and evidence-based treatments for common mental disorders and dementia, especially holistic approaches using personalized and coordinated care and integrating mental health and/or dementia problems in the care of other non-communicable diseases in resource-constrained contexts. Central to her work is the cultivation of partnerships and capacity building for health research, interventions, and systems strengthening in the Caribbean. 

Luis Miguel Gutiérrez Robledo

National Institute of Geriatrics, Mexico

Dr LuisGutiérrez currently serves as Director General of the National Institute of Geriatrics at the National Institutes of Health in Mexico. He trained in France in geriatric medicine and the biology of ageing.

Saadiya Hurzuk

ARDSI - Alzheimer's and Related disorders Society of India, India

Saadiya Hurzuk is a Psychologist with MSc in Dementia studies from University of Stirling. She has over six years of experience as a dementia professional working in various different setups like hospitals, daycares and memory clinics and is currently working as Centre Manager and Dementia Psychologist at ARDSI Hyderabad Deccan, running a full time Dementia daycare incorporating a  holistic approach. She is involved in various studies on topics such as person centred approaches in  dementia care, benefits of cognitive stimulating activities in people living with dementia, etc. and actively campaigns for dementia awareness across India. 

Shereen Hussein

Independent Consultant

Professor Shereen Hussein is a consultant on the STRiDE project. Shereen is a Professor of Care and Health Policy Evaluation at the PSSRU at Kent and an Adjunct Professor of Applied Statistics and Population Science at the University of Southern Queensland, Australia. Shereen brings over 25 years experience of research in aged and dementia care models with a particular focus on workforce planning and strategies. She has advised the Australian government in relation to the National Disability Insurance Scheme as well as a number of other governments, including Turkey and Oman, to formulate new ageing and dementia care policies and strategies. She has worked with several international organisations including the United Nations, UNICEF, the World Health Organisation and the World Bank. 

Alia Ibnidris

Independent Consultant

Alia Ibnidris is working with Emiliano Albanese on the STRiDE project, particularly focusing on evidence review. 

Roxanne Jacobs

University of Cape Town, South Africa

Roxanne Jacobs has joined the South African team at the Centre for Public Mental Health at the University of Cape Town, as an early career researcher on the STRiDE project.  She is a research psychologist with a background in psychology, research methods and gender women’s studies. Roxanne has worked with multi-disciplinary teams both locally and internationally on public health- and social science subject areas, with a particular focus on injury prevention and the psychosocial recovery of vulnerable groups to adverse events within a resource constrained setting like South Africa.  

Michael Lefevre

Alzheimer’s Disease International, UK

Michael Lefevre is General Manager at ADI. He is in charge of all aspects of ADI's Finance and IT systems, projects, HR and governance including financial reporting, accounts and planning.

Klara Lorenz

Personal Social Services Research Unit, London School of Economics and Political Science, UK

Klara is a Research Officer working on both the STRiDE (Strengthening responses to dementia in developing countries) and the MODEM (modelling outcome and cost impacts of interventions for dementia) projects and the and will shortly complete her PhD at LSE looking at the well-being and quality of life of unpaid carers of people with dementia. Klara has research interests in health economics and policy issues surrounding the topics of geriatrics and mental health. Before coming to the LSE, she contributed to the OECD response to Dementia, while pursuing a Traineeship at the Organisation of Economic Cooperation and Development in Paris. Klara received a Masters in Public Health from the École des Hautes Études en Santé Publique in France in 2014 and a Bachelor Degree of Arts and Honours in Applied Economics and International Relations from Kingston University London (2012).

Crick Lund

University of Cape Town, South Africa

Professor Crick Lund is Director of the Alan J Flisher Centre for Public Mental Health at the University of Cape Town. He is CEO of PRIME (Programme for Improving Mental Health Care), a DFID-funded research consortium focusing on the integration of mental health into primary care in low-resource settings, and Principal Investigator of AFFIRM (Africa Focus on Intervention Research for Mental Health) U19 NIMH Collaborative Hub. He trained as a clinical psychologist and was involved in developing post-apartheid norms for mental health services for the national Department of Health. He also worked on the development of the WHO Mental Health Policy and Service Guidance Package, and consulted to Lesotho, Namibia, Indonesia, South Africa and Zimbabwe on mental health policy and planning. His research interests lie in mental health policy, service planning and the relationship between poverty and mental health in low and middle-income countries.

David McDaid

Personal Social Services Research Unit, London School of Economics and Political Science, UK

David McDaid is an Associate Professorial Research Fellow in Health Policy and Health Economics within PSSRU at LSE. He is involved in a wide range of work on mental health and public health in the UK, Europe and at the global level. He has published over 300 peer reviewed papers and reports, including a report for the UK Department of Health which looked at the economic case for investing in mental health promotion and mental disorder prevention.

Anji Mehta

Personal Social Services Research Unit, London School of Economics and Political Science, UK

Anji Mehta is Centre Manager of the PSSRU at LSE and Finance and Impact Manager within the NIHR School for Social Care Research. Over the last nine years, Anji has also been working on studies exploring knowledge exchange and impact for adult social care research, implementation of research, engagement of practice and policy in research processes, and the types and use of knowledge in decision-making.

Christine Musyimi

Africa Mental Health Foundation, Kenya

Dr Christine Musyimi is a community mental health researcher at Africa Mental Health Foundation. She received her PhD in Global Mental Health from Vrije Universiteit, Amsterdam, and MSc in Medical Statistics and BSc in Nursing from the University of Nairobi, Kenya. She has written extensively (in book chapters and peer-reviewed journals) on initiating collaborative processes between the formal and informal health sectors including introduction of mental health evidence-based approaches in the latter sector. She has also been a Principal Investigator on three mental health related grants funded by Grand Challenges Canada and Grand Challenges Africa.

Elizabeth Mutunga

Alzheimer’s & Dementia Organisation Kenya, Kenya

Elizabeth Kasimu Mutunga is a trained psychologist and human rights practitioner. She developed an interest in Alzheimer’s disease after her father was diagnosed in 2007. At the time the disease was a mystery to her and her family. In trying to understand how best to cope with the disease and care for the father better, she started looking for a support group which she could plug into and get support, encouragement and walk with other caregivers. When she found no support groups, she decided to start a monthly support group herself. Due to her passion to help others affected by the disease, she decided to start an NGO and Alzheimer's and Dementia Organisation Kenya was founded.

Huseyin Naci

Department of Health Policy, London School of Economics and Political Science, UK

Dr Huseyin Naci is an Assistant Professor of Health Policy and Programme Director to the Executive MSc in Health Economics, Outcomes, and Management in Cardiovascular Sciences within the Department of Health Policy at LSE. Huseyin’s academic interests include pharmaceutical regulation, comparative effectiveness research, and health policy evaluation. His recent research evaluated the evidence requirements for market entry of new health technologies.

David M Ndetei

Africa Mental Health Foundation, Kenya

David M Ndetei is Professor of Psychiatry at the University of Nairobi, Kenya and Founding Director of AMHF (Africa Mental Health Foundation), an NGO dedicated to research for evidence-based policy, practice and promotion of mental and neurological health, and healthy behaviour. He has authored 320 scientific publications, 21 monographs and 5 books. David holds positions in several professional bodies including Chair of Africa Division of the Royal College of Psychiatrists, UK and board member of the World Psychiatric Association and World Association of Psychosocial Rehabilitation.  His vision is affordable and evidence-based mental health services for Kenya.

Deborah OIiveira

Universidade Federal de Sao Paulo, Brazil

Deborah has a background in nursing and has a Master's degree in Nursing Science from the University of Campinas (UNICAMP), Brazil. She was awarded her PhD by the University of Nottingham (UoN), United Kingdom, in 2017. Deborah has clinical and research experience with family carers and older people living with dementia. She has previously worked as a research fellow for several UK and European projects based in the UK. Her interests are related to mixed-methods research and scale development in health-promoting self-care in older adults, dementia risk reduction, quality of life and long-term care.

Mariana López Ortega

National Institute of Geriatrics, Mexico

Mariana López Ortega is a researcher at the National Institute of Geriatrics, Mexico.

Meera Pattabiraman

ARDSI - Alzheimer's and Related disorders Society of India, India

Mrs Meera Pattabiraman is Chairperson of the Alzheimer's and Related Disorders Society of India and has been associated with the NGO for twenty years. She has varied work experience – counselling, planning and setting up of care facilities for persons with dementia, conducting training programmes and advocating with state and central governments. Her biggest success is the Kerala State Initiative on Dementia, the first state private partnership for dementia care, diagnosis, training and awareness in India. She is one of the authors of the Dementia India Report 2010, and a member of the World Dementia Council and the Global Alliance for Women’s Health.

Maximilian Salcher

Personal Social Services Research Unit, London School of Economics and Political Science, UK

Maximillian Salcher is a Research Officer within PSSRU at LSE using structured reviews and meta-analyses to assess current evidence on what works in dementia care in developing countries. He also works as a Research Officer part-time within LSE Health. Maximilian’s research interests include real world evidence, evidence synthesis, study design, decision-making at the patient and population levels and economic evaluation. Maximilian’s PhD research focuses on evidence requirements for drug marketing authorisation. His empirical work includes an evaluation of evidence standards in accelerated access pathways, focusing on the role of non-randomised studies and surrogate measures. He obtained his MSc in Health Policy, Planning and Financing from LSE and LSHTM in 2014. Prior to moving to London, he completed his undergraduate studies in economics at the Vienna University of Economics and Business and worked as a research assistant at the Institute for Advanced Studies in Vienna, Austria.

Tara Puspitarini Sani

Alzheimer’s Indonesia, Indonesia

Tara Sani is Scientific Director in Alzheimer’s Indonesia (ALZI). She graduated from Faculty of Medicine, Atma Jaya Catholic University of Indonesia, where she holds an academic post. Her involvement in ALZI includes organising over 140 dementia education sessions for schools and communities in Jakarta as well as educating medical students, healthcare professionals and caregivers through workshops and ADI’s Dementia Care Skills training. She attended ADI’s Alzheimer’s University 2015 in London. In 2016, she received Indonesia Endowment Fund for Education scholarship to pursue MSc Dementia: Causes, Treatments and Research in UCL Institute of Neurology, and volunteered for St. Joseph’s Hospice during her time in London.

Marguerite Schneider

University of Cape Town, South Africa

Dr Marguerite (Margie) Schneider is a researcher in the field of disability studies, and Assistant Professor and Deputy Director at the Alan J Flisher Centre for Public Mental Health, UCT. She started her career as a Speech-Language Pathologist and Audiologist before moving into broader social science research focusing on disability studies. She has worked at the Community Agency for Social Enquiry, the WHO, the Human Sciences Research Council and as an independent consultant in the field of disability studies. A number of her publications have been on disability measurement and she is involved in the Washington Group on Disability Statistics which aims to develop internationally comparable survey measures of disability.

Kate Swaffer

Dementia Alliance International, Australia

Kate Swaffer is co-founder, Chair and Chief Executive Officer of Dementia Alliance International. Kate is also an elected Board member of Alzheimer's Disease International, and a full member of the World Dementia Council. She is retired nurse, and now an activist for human rights for people with dementia and their families, and also lives positively with young onset dementia. Kate is an international speaker, widely published academic and author and a poet and regular blogger. She is also a PhD Candidate at the University of Wollongong.  In 2017, she was a recipient of the South Australian Australian of the Year award; in 2016 she received the University of Wollongong Alumni Social Impact Award; and was one of 100 Women of Influence in Australia, also in 2016. Kate has been instrumental in ensuring Dementia Alliance International is one of the founding members of the newly established Global Rehabilitation Alliance. Kate is actively involved on a number of international, national and local Dementia or Civil Society Steering Committees, Advisory or Working groups, and was an invited keynote speaker at the WHO First Ministerial Conference on Dementia in 2015.

Eileen Taylor

Dementia Alliance International, Australia

Eileen Taylor was diagnosed with early onset familial Alzheimer’s in 2009. She is currently Secretary of Dementia Alliance International (DAI) and hosts their Australia online weekly support group. She is Vice Chair of Dementia Australia, a member of their Advisory Group on Dementia Friendly Communities and a co-founder of DAAT (Dementia Awareness Advocacy Team). During 2016, she presented at the Dementia Australia National Consumer Summit in Canberra, the ADI Conference in Budapest and at the ADI's Regional Conference in New Zealand. She also presented a poster at the Dementia Australia 2018 national conference "Be the Change". She was a personal counsellor for nearly 20 years (now retired) and has an M.in HS (Hons) Rehab from Griffith University. Eileen has been a research study participant at The Prince Charles Hospital Geriatric Research Unit since she was diagnosed, and has participated in three clinical trial studies so far.

Dubhglas Taylor

Dementia Alliance International, Australia

Dubhglas Taylor is care partner for Eileen Taylor. He helped develop the first dementia support organisation in Brisbane. He has supported and been involved with Eileen in advocating for her and others over the years; including supporting Eileen through her dementia clinical trial journey. Dubhg is a co-founder of DAAT (Dementia Awareness Advocacy Team) and is actively involved with their "Remember Me" Dementia Support Group.  He has a Master’s Degree in Social Science and a clinical background in social work, working for the past thirty years as a therapist / supervisor / educator and lecturer. He still lectures at university level in CHC's Social Science School. He is a public speaker at various community groups and organisations, discussing dementia and other social issues. Along with Eileen, he is a fierce advocate in fighting for the rights of people living with dementia.

Imelda Theresia

Alzheimer’s Indonesia, Indonesia

Imelda Theresia has extensive experience in project management and implementation for social protection and awareness raising programmes. Theresia is currently a member of the Executive Board of Alzheimer’s Indonesia (ALZI) and Supervisory Board of OnTrack Media Indonesia. She has coordinated many projects and worked for numerous donors and agencies including USAID, European Union, Unicef, UNFPA ACIL and ICMC, AUSAID, World Bank and Grand Challenges Canada. Theresia supports ALZI in finance and campaign strategies, and since 2014, she has worked closely with ALZI to kick-start Alzheimer’s Awareness in Indonesia, achieving a public relations value of US$ 2 million and reaching an estimated 66 million people in one year.

Yuda Turana

Atma Jaya Catholic University of Indonesia, Indonesia

Dr Yuda Turana is Dean of the Faculty of Medicine, Atma Jaya Catholic University of Indonesia, and lecturer and researcher at the Neurology Department. He is Chairman of the Neurogeriatrics Study Group of the Indonesian Society of Neurologists, on the Board of Trustees of Alzheimer's Indonesia and on the Advisory Board of ADI Asia Pacific. He was on the working group on ageing, established by the Indonesian Ministry of Health in 2014. He was involved in the creation of Indonesia’s National Dementia plan and was appointed as WHO’s focal point on dementia in Indonesia. His research activities focus on biomarkers and clinical markers of cognitive decline and Alzheimer's disease.

Wendy Weidner

Alzheimer’s Disease International, UK

Wendy Weidner joined Alzheimer’s Disease International (ADI) as Research and Policy Project Lead in 2018. She is responsible for ADI’s participation in the STRiDE project and other research that ADI is involved in, including liaising with ADI’s Medical and Scientific Advisory Panel. Previously, Wendy worked at Dementia UK, where her role involved working collaboratively to develop and improve dementia services, developing business cases, promoting the work of the organisation and managing the business development team. Wendy has also managed a local reminiscence project for people living with dementia and worked for a number of organisations in Africa.

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